Most boys with dmd are diagnosed when they are around 4. Until that point you really don't notice very many differences between your son and other boys. Ryan was 4 1/2 when i started to notice little changes. He was having a harder time getting up off the floor , climbing steps and keeping up with his older brothers. He start to complain about being tired. I took him to the doctor not really expecting anything to be wrong, until the phone call from the doctor came that changed our lives forever. The doctor says" I am sorry, your son has Duchennes Muscular Dystrophy. there is currently no treatment or cure and it is 100% fatal".
God has not chosen to heal Ryan at this point, he is allowing us to go through all the struggles, pain and difficulties , he has not sheltered us from any of it. Ryan lost the ability to walk at age 10, just at the age the "blue prints" said he would, Ryan ended up needing back surgery at 13 yrs old just as the "blue Prints" said he would. Now we know, thanks to the "blueprints" what we have to look forward to next.
While God has not healed Ryan let me tell you what he has done. He has been with us every moment, every step of the way. Even though at the time we felt very much alone I can look back and see very specific ways he showed us he has not forgotten us. He has changed me in a way that I would have never been changed otherwise. He has opened my eyes to see people in a different way, to see the hurt and pain that others are going through and has given me compassion that I never thought I could have. He is continuing to change me as I struggle with selfishness.
God is with us and has used dmd to change us in ways we couldn't have imagined , yet I will never stop praying for a cure. Duchennes needs to end, no one should have to watch their son go through what our boys have to go through. I do know that a cure is not Ryan's only hope. God is showing me that this world is only temporary, only a stepping stone to something greater and eternal with him in heaven forever!! THAT is the only thing that gets me through some of the more difficult days ( and there are many of them). Knowing Ryan has a forever home in heaven that we don't have to try and hold onto this life with everything we have, that a life much better, less painful awaits all of us . THAT is truth! While I don't have what you call scientific evidence that God exists , I do have the strength to face each milestone as they come and while they are very difficult they do not destroy us. We have the strength to get up out of bed knowing what the "blueprints" say will come next, THAT is how I know that God is real!