While unloading Ryan from the van at a store,
it is not unusual for someone to ask about our accessible van. The questions
are always the same. How much did it cost, where did we get it and did
insurance pay for it? Next they proceed to tell me about the person in their
life who needs one. I don't mind answering the questions about the van and I always
try to ask a few questions about the person they care for. After a few minutes,
we say our good-byes. As I walk away, I often find myself fighting the tears. These
are usually older men who are now finding themselves as care-givers for their
wives.
It’s not their story that brings me to tears, it’s
what they aren’t saying. I see it on their face and hear it in their voice. I feel
the loneliness. I sense their fatigue and often identify with their struggle
and how life has changed and will continue to change for them. It is my hope
and prayer that in those few minutes of conversation they see that someone else
does get it, understands and cares.
I really do understand, because I know that
lurking behind all of these feelings is Isolation! Feelings of isolation and are
all too familiar. Even with the ability to get out with Ryan it isn’t easy.
While I may be a social person by nature, Ryan is not. It is hard for him to
want to leave the house. Home for him is his “safe place.” As a result, we
spend many long days at home, just the two of us.
I do have a few people in my life that understand.
They offer to come over for a cup of coffee or call to chat on the phone. Even
so, there are many days when there is too much time to fill. I know it is hard
to believe, especially these days when everyone is crazy busy, but there is such
a thing as having too much time on your hands.
Days and times such as these can often lead to
depression. And, it does take a lot of effort for me not to fall into the pit
of depression. I often have this discussion with Ryan. It is not good for
either one of us to spend too many days of the week isolating ourselves. I have
to be intentional about getting us out of the house. It is so easy to give in,
order grocery delivery and binge watch Netflix. But I know, for both of our
mental health, we need to get out and be around people even if it’s just going
to the grocery store.
This may not be the case for all full-time
family care givers. Everyone’s situation and circumstances are different. For
me, it has only been in the last few years, since my older children have grown
up and left the home that it has hit hard. Do you find you are in a similar
situation? Do you struggle feeling isolated? How do you keep from becoming
lonely and depressed?
For me, if a few days have gone by that we have
not left the house I feel myself slowly feeling isolated and sinking into
depression. The longer time goes by, the harder it is to get motivated to even
do a load of laundry. I have learned when I get to this point, Ryan and I load
up in the van and go. It doesn’t matter where, just getting out helps.
Sometimes if nothing else, we just go for a drive.
Do you know someone who is a full time care-giver
for a parent, a spouse or a child? Understanding that their opportunities to
get out of the house maybe limited, what can you do to show them they aren’t
alone?
For me, I appreciate those few people in my
life who reach out to me. Whether it be a phone call or offering to come over
for a visit. Real human connection is a must; sometimes we must be creative with
how that might work depending on the situation.
Our in-depth research on the felt needs of caretakers indicated that isolation, lack of interest by others, and loneliness was one of their greatest needs. Our responders said: "Nobody askes about us." They always focus on our loved ones or like in this story, the van. "Nobody from church has ever visited us nd prayed for our child."
ReplyDeleteOne mom said, "Our community built us a house. I am very thankful they cared but we did not ask for a house or need a house. I just want someone to come over and have coffee with me."
We are launching a new online, web based program that is aimed at partially relieving that problem.